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Channel: Perspective | Journal of Participatory Medicine
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Going Digital with Patients: Managing Potential Liability Risks of...

Some physicians are understandably reluctant to receive digital data from patients due to professional liability concerns, yet this means missing patient-generated health data that could be crucial to...

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But You Said I Wouldn’t Need Radiation

Which physician would you rather have as a patient? Here a breast cancer survivor analyzes the communication styles of two of her doctors -- the first left her anxious and bereft, while the second...

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Caseous Swiss Medicine

A medical student recounts a tense situation that occured in an inpatient setting because of the many "holes" in the "Swiss cheese" system.

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An e-Patient Awakening: Endometriosis

An anonymous e-patient candidly shares lessons learned after endometriosis surgery.

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How a Patient Was Motivated by Reading His Office Notes

A patient who tried for years, and failed, to make healthier lifestyle choices finally found inspiration in the office notes his doctor shared with him.

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Patient Engagement: A Skill Cultivated Through Deliberate Practice? How the...

A shocking medical diagnosis doesn't come with a playbook for how to face it. The author created his own playbook for coping with his infant son's condition, by applying Lean management principles he...

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Collaboration and Information: Conquering My Uterus

When the author, a medical writer, found herself in the unfamiliar role of being a patient that she truly understood how important it was to ensure that both the clinician and patient worked as a team...

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Out-of-Network Provider Billed as In-Network: My Appeal Process

An empowered patient shares his “out-of-network nightmare” of being wrongfully denied insurance coverage, and how his perseverance in challenging the injustice paid off.

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A Framework for Designing Digital Health Tools with Empathy

Empathy is a fundamental principle of medicine, yet it is often overlooked in the design of digital health tools. This omission may undermine the main purpose of these tools -- to engage patients in...

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Should Hospital Patients Have Bedside Access to Their Complete Medical Records?

Patients benefit from having access to their complete medical record. Information can empower patients to participate in their care, decrease the anxiety brought on by uncertainty about their...

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